Amicus Curiae Brief — Christopher N. Payne, Petitioner v. Jahal Taslimi, et al.
Supreme Court briefNov 23, 2021
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No. 21-617
In the
Supreme Court of the United States
CHRISTOPHER N. PAYNE,
Petitioner,
v.
JAHAL TASLIMI; MS. SMITH, LPN,
Respondents.
On Petition for a Writ of Certiorari to the
United States Court of Appeals for the Fourth
Circuit
BRIEF OF UPTOWN PEOPLE’S LAW CENTER
AS AMICUS CURIAE IN SUPPORT OF
PETITIONER
A LAN MILLS
U PTOWN PEOPLE’ S
LAW CENTER
4413 N. Sheridan
Chicago, IL 60640
773-769-1411
alan@uplcchicago.org
CHARLES B. K LEIN
Counsel of Record
WINSTON & S TRAWN LLP
1901 L Street, N.W.
Washington, DC 20036
202-282-5000
cklein@winston.com
i
TABLE OF CONTENTS
Page
TABLE OF CONTENTS ............................................................i
TABLE OF AUTHORITIES ................................................... iii
INTEREST OF AMICUS CURIAE .........................................1
INTRODUCTION AND SUMMARY OF ARGUMENT ......1
ARGUMENT ...............................................................................3
I.
II.
The Fourth Circuit Ignored The WellRecognized Right To Privacy Of Medical
Information, Particularly HIV-Related
Information—Creating A Circuit Split. ............ 3
A.
The Second, Third, And Sixth Circuits
Recognize That Gratuitous Disclosure Of
HIV Status Violates A Prisoner’s
Privacy Rights. .......................................... 3
B.
The Fourth Circuit Erroneously Relied
on Hudson And Erred By Applying
Search-And-Seizure Privacy Rights
Afforded By The Fourth Amendment
Instead Of The Confidentiality Rights
Afforded By The Fourteenth
Amendment. .............................................. 8
Review Is Particularly Warranted To Prevent
Unconstitutional Disclosure Of A Prisoner’s
HIV Status, Causing Unnecessary Harassment
And Harm. ..........................................................12
ii
III.
There Is No Adverse Effect To Penological
Interests In Requiring Modest Measures To
Maintain Privacy As To HIV Status. ..............17
CONCLUSION ........................................................................ 21
iii
TABLE OF AUTHORITIES
Page(s)
Cases
Anderson v. Romero,
72 F.3d 518 (7th Cir. 1995) ................................................ 15
Doe v. City and Cnty. of S.F.,
2017 WL 1508982 (N.D. Cal. Apr. 27,
2017) ..................................................................................... 14
Doe v. City of N.Y.,
15 F.3d 264 (2d Cir. 1994) ................................................. 13
Doe v. Delie,
257 F.3d 309 (3d Cir. 2001) ....................................... passim
Doe v. Lincoln Natl’l Life Ins. Co.,
2017 U.S. Dist. LEXIS 117110 (N.D. Cal.
July 26, 2017) ...................................................................... 14
Doe v. Metro. Life Ins. Co.,
2016 U.S LEXIS 64387 (N.D. Cal. May
13, 2016)............................................................................... 14
Elliott v. Lynn,
38 F.3d 188 (5th Cir. 1994) ................................................ 10
Harris v. Thigpen,
941 F.2d 1495 (11th Cir. 1991)................................... 15, 16
Henry v. Hulett,
969 F.3d 769 (7th Cir. 2020) (en banc) ............................... 9
Hudson v. Palmer,
468 U.S. 517 (1984) .................................................... passim
iv
Lambert v. Hartman,
517 F.3d 433 (6th Cir. 2008) .............................................. 11
Moore v. Prevo,
379 F. App’x 425 (6th Cir. 2010) ..................................7, 11
Nasa v. Nelson,
562 U.S. 134 (2011) ..................................................... 10, 11
Nixon v. Adm’r of Gen. Servs.,
433 U.S. 425 (1977) ............................................................ 10
Patient v. Corbin,
37 F. Supp. 2d 433 (E.D. Va. 1998) .................................. 14
Payne v. Taslimi,
998 F.3d 648 (4th Cir. 2021) ...................................... passim
Pell v. Procunier,
417 U.S. 817 (1974) ........................................................3, 18
Powell v. Schriver,
175 F.3d 107 (2d Cir. 1999) ....................................... passim
Roe v. City of Milwaukee,
37 F. Supp. 2d 1127 (E.D. Wisc. 1999) ............................ 14
Roe v. City of N.Y.,
151 F. Supp. 2d 495 (S.D.N.Y. 2001) ............................... 14
Turner v. Safley,
482 U.S. 78 (1987) ................................................................ 3
W.G.A. v. Priority Pharm., Inc.,
184 F.R.D. 616 (E.D. Mo. 1999) ....................................... 14
Walls v. City of Petersburg,
895 F.2d 188 (4th Cir. 1990) ..........................................8, 18
v
Whalen v. Roe,
429 U.S. 589 (1977) ..................................................... 10, 11
Statutes
5 U.S.C. § 552 ..................................................................... 19, 20
5 U.S.C. § 552(a) ....................................................................... 19
42 U.S.C. § 1983 .......................................................................... 4
Other Authorities
28 C.F.R. § 549.14(a)–(b) (2021)............................................. 18
Bureau of Prisons, Freedom of Information
Act Response (Nov. 3, 2021) ............................................. 19
BUREAU OF PRISONS, INFECTIOUS D ISEASE
MANAGEMENT 15 (2014). ................................................... 19
CENTERS FOR D ISEASE CONTROL AND
PREVENTION, EVIDENCE OF HIV
TREATMENT AND V IRAL SUPPRESSION IN
PREVENTING THE SEXUAL TRANSMISSION
OF HIV 1 (Dec. 2020).......................................................... 16
GLAAD, 2021 STATE OF HIV STIGMA 4
(2021) ................................................................................... 16
Hannah R. Fishman, HIV Confidentiality and
Stigma: A Way Forward, 16 U. PA . J.
CONST. L. 199, 201 (2013) ................................................. 12
Lance S. Rintamaki et al., Social Stigma
Concerns and HIV Medication Adherence,
20 AIDS PATIENT CARE & STD S 359
(2006) ............................................................................ 12, 13
vi
Susan Reif et al., Perceptions and Impact of
HIV Stigma Among High Risk Populations
in the US Deep South, 4 J. HIV & AIDS 1,
1–3 (2018) ..................................................................... 12, 13
U.S. Const., amend. IV...................................................... passim
U.S. Const., amend. XIV .................................................. passim
UNITED NATIONS O FFICE ON D RUGS AND
CRIME, HIV/AIDS PREVENTION , CARE,
TREATMENT , AND SUPPORT IN PRISON
SETTINGS 12 (Oct. 2006) ............................................. 15, 16
1
INTEREST OF AMICUS CURIAE 1
The Uptown People’s Law Center (“UPLC”) is a
non-profit entity that advocates for prisoners, tenants,
and disabled people denied benefits. UPLC works to
improve people’s quality of life through sound,
community-oriented lawyering and by leveraging the
law to affect social change. UPLC does not view
individual cases in isolation, but rather tries to
address the root of the underlying issues. Instead of
taking on a specific legal case, UPLC looks at the
person as a member of the community that needs help.
UPLC has represented several prisoners whose HIV
status has been disclosed to other prisoners and
civilians by prison staff.
INTRODUCTION AND SUMMARY OF
ARGUMENT
A prison doctor approached petitioner, within
earshot of other prisoners, and told him “he had ‘not
take[n] [his] HIV medications’ that day.” Payne v.
Taslimi, 998 F.3d 648, 653 (4th Cir. 2021) (alteration
in original; emphasis added). Petitioner alleges that
respondents violated his civil rights by gratuitously
disclosing his HIV status to other prisoners and
civilians. The trial court dismissed the complaint and
the Fourth Circuit affirmed in a published opinion,
holding that prisoners lack a reasonable expectation of
privacy as to their HIV status. In doing so, the Fourth
Circuit departed from holdings by the Second, Third
Pursuant to S. Ct. Rule 37.6, counsel for all parties have
consented to the filing of this brief. No counsel for a party
authored this brief in whole or in part and no person or entity
other than amicus, its members, or counsel made a monetary
contribution to its preparation or submission.
1
2
and Sixth Circuits—all of which have recognized
privacy interests of prisoners as to HIV status under
the Fourteenth Amendment. This Court’s review is
necessary to resolve that circuit split and confirm a
prisoner’s constitutional privacy rights.
Amicus submits this brief to emphasize that
review is particularly warranted here given the stigma
associated with HIV, which remains one of the most
stigmatized medical conditions in the world.
Disclosure of a prisoner’s HIV status while imprisoned
often results in threats and harassment, including
possible bodily harm. It is well documented that
incarcerated persons living with HIV face social
isolation, intolerance, and violence. This HIV stigma
persists despite medical advances having greatly
reduced the lethality and communicability of the
disease.
Only modest steps were needed here to preserve
petitioner’s constitutional rights. The doctor merely
needed to say “take your medication” instead of “take
your HIV medication” to avoid drawing undue
attention to petitioner’s HIV status. Respondents can
point to no credible penological interests in allowing
prison doctors to disclose a prisoner’s HIV status to
fellow prisoners.
Gratuitous disclosure of a prisoner’s HIV status
is a recurring problem, addressed by numerous courts
over the years. This case provides the right vehicle for
this Court to resolve the circuit split created by the
Fourth Circuit and confirm that incarcerated people
have a constitutional privacy right in their HIV status.
Certiorari should be granted.
3
ARGUMENT
I.
The Fourth Circuit Ignored The WellRecognized Right To Privacy Of Medical
Information, Particularly HIV-Related
Information—Creating A Circuit Split.
This Court “ha[s] repeatedly held that prisons
are not beyond the reach of the Constitution. No ‘iron
curtain’ separates one from the other.” Hudson v.
Palmer, 468 U.S. 517, 523 (1984). While “lawful
incarceration brings about the necessary withdrawal
or limitation of many privileges and rights,” this Court
has insisted that “a prison inmate retains those
[constitutional] rights that are not inconsistent with
his status as a prisoner or with the legitimate
penological objectives of the corrections system.” Pell
v. Procunier, 417 U.S. 817, 822 (1974); see also
Hudson, 468 U.S. at 523. In other words, a prisoner’s
rights may be curtailed only where “[t]he curtailment
of certain rights is necessary, as a practical matter, to
accommodate a myriad of ‘institutional needs and
objectives’ of prison facilities[.]” Hudson. 468 U.S. at
524; Turner v. Safley, 482 U.S. 78, 89 (1987) (“[W]hen
a prison regulation impinges on
inmates’
constitutional rights, the regulation is valid if it is
reasonably related to legitimate penological
interests.”).
A.
The Second, Third, And Sixth Circuits
Recognize That Gratuitous Disclosure Of
HIV Status Violates A Prisoner’s Privacy
Rights.
Over twenty years ago, the Second Circuit was
the first to find a prisoner’s right to privacy as to HIV
status. See Powell v. Schriver, 175 F.3d 107, 111–12
4
(2d Cir. 1999). In Powell, a prisoner sued under § 1983
alleging
a corrections officer violated
her
constitutional right to privacy by telling other
prisoners she was HIV positive. Id. at 109. The
Second Circuit recognized the prisoner’s Fourteenth
Amendment right to privacy in her HIV status. Id. at
112–13.
Under Second Circuit precedent, “[i]ndividuals
who are infected with the HIV virus clearly possess a
constitutional right to privacy regarding their
condition.” Id. at 110 (citation omitted). After all,
“[a]n individual revealing that she is HIV seropositive
potentially exposes herself not to understanding or
compassion but to discrimination and intolerance,
further necessitating the extension of the right to
confidentiality over such information.” Id. at 111
(citation omitted). The Powell court extended the
constitutional privacy right as to HIV status to
transexuals and addressed, among other things,
whether prisoners lose these constitutional rights by
virtue of their incarceration.
Relying in part on this Court’s precedent, the
Second Circuit held that “[p]rison inmates do not shed
all fundamental protections of the Constitution at the
prison gates” unless they are “inconsistent with [their]
status as . . . prisoner[s] or with the legitimate
penological objectives of the corrections system.” Id.
at 112 (citing, among other cases, Turner, 482 U.S. at
95, and Pell, 417 U.S. at 822) (alterations in original).
While leaving open the possibility “of circumstances
under which disclosure of an inmate’s HIV-positive
status would further legitimate penological interests,”
such as an anti-contagion measure, the court
concluded “that the gratuitous disclosure of an
inmate’s confidential medical information . . . violates
5
the inmate’s constitutional right to privacy.” Powell,
175 F.3d at 112.
In reaching this conclusion, the court
distinguished privacy rights under the Fourth
Amendment:
“The
right
to
maintain
the
confidentiality of medical information is sufficiently
distinct from the right to privacy protected by the
Fourth Amendment[.]” Id. at 112 n.3. The court thus
distinguished its case from Hudson v. Palmer, where
this Court held that prisoners lack a privacy right
against unreasonable searches of their prison cells.
See 468 U.S. at 525–26. Considering the differences in
the privacy right at issue, the Second Circuit reasoned
that “the Supreme Court’s holding in Hudson v.
Palmer has no bearing on this case.” Powell, 175 F.3d
at 112 n.3 (citing 468 U.S. at 526). 2
Two years later, the Third Circuit “join[ed] the
Second Circuit in recognizing that the constitutional
right to privacy in one’s medical information exists in
prison.” Doe v. Delie, 257 F.3d 309, 317 (3d Cir. 2001).
The court emphasized “that the privacy interest in
information regarding one’s HIV status is particularly
strong because of the stigma, potential for
harassment, and ‘risk of much harm from nonconsensual dissemination of the information.’” Id. at
2 The Powell court ultimately affirmed entry of judgment against
the prisoner as to her right-to-privacy claim based on qualified
immunity, finding “that the right of a prisoner to maintain the
privacy of medical information was not clearly established on
December 31, 1991[.]” 175 F.3d at 113-14; see also id. at 110 (“As
the Supreme Court recommends, we consider [a] qualified
immunity defense only after first deciding whether [the plaintiff]
‘has alleged a deprivation of a constitutional right at all.’”
(quoting Cnty of Sacramento v. Lewis, 523 U.S. 833, 841 n.5
(1998)).
6
315 (citation omitted). Indeed, ““[i]t is beyond question
that information about one’s HIV positive status is
information of the most personal kind and that an
individual has an interest in protecting against the
dissemination of such information.” Id. at 316.
Like the Second Circuit, the Third Circuit
distinguished the Fourth Amendment privacy right in
Hudson from the privacy right in one’s medical
information. Ibid. (citing Hudson, 468 U.S. at 525).
Indeed, the Third Circuit held that a prisoner’s “right
to privacy in his medical information is completely
different than the right extinguished in Hudson. . . .
The right to nondisclosure of one’s medical information
emanates from a different source and protects
different interests than the right to be free from
unreasonable searches and seizures.” Id. at 316
(citing, among other cases, Hudson, 468 U.S. at 525
and Whalen v. Roe, 429 U.S. 589, 598–99 (1977)).
Also like the Second Circuit, the Third Circuit
acknowledged the exception stated in Hudson limiting
a prisoner’s rights to those “not fundamentally
inconsistent with imprisonment itself or incompatible
with the objectives of incarceration[.]” Hudson, 468
U.S. at 523; Delie, 257 F.3d at 317. In other words, “an
inmate’s constitutional right may be curtailed by a
policy or regulation that is shown to be ‘reasonably
related to legitimate penological interests.’” Delie, 257
F.3d at 317. But “a prisoner’s right to privacy in this
medical information is not fundamentally inconsistent
with incarceration.” Ibid. Thus, while a prisoner may
not have “a right to conceal this diagnosed medical
condition from everyone in the corrections system,”
unnecessary disclosure to some may be violative. Ibid.
(emphasis added).
7
The facts in Delie are strikingly like petitioner’s
experience. In Delie, a prisoner with HIV alleged that
the door to the clinic room was left open, allowing other
incarcerated people to see and hear the content of his
doctor appointments, and that nurses announced his
HIV medication loudly enough for other incarcerated
people to hear. Id. at 311–12. While the Third Circuit
ultimately ruled against the prisoner on qualified
immunity grounds, the court left open the possibility
that the prisoner’s privacy right would have been
found to be violated if the government could not show
some legitimate penological interest. Id. at 317–22
(finding no clearly established right because, by 1995,
“no court of appeals had held that prisoners retained a
constitutional right to the privacy of their medical
information”).
The Sixth Circuit joined the Second and Third
Circuits “in finding that, as a matter of law, inmates
have a Fourteenth Amendment privacy interest in
guarding against disclosure of sensitive medical
information from other inmates subject to legitimate
penological interests.” Moore v. Prevo, 379 F. App’x
425, 428 (6th Cir. 2010). In Moore, the plaintiff alleged
that corrections officers and a nurse violated his
constitutional right to privacy when they informed
another prisoner that the plaintiff was living with
HIV. Id. at 425–26. In response to a dissent, the
majority observed that “[w]e are aware of no other
circuit to have categorically barred a prisoner from
bringing a claim against prison officials over the
unnecessary dissemination of his sensitive medical
information to other inmates.” Id. at 427 n.4. The
Sixth Circuit thus declined to “create a circuit split.”
Ibid.
8
B.
The Fourth Circuit Erroneously Relied on
Hudson And Erred By Applying SearchAnd-Seizure Privacy Rights Afforded By
The Fourth Amendment Instead Of The
Confidentiality Rights Afforded By The
Fourteenth Amendment.
The Fourth Circuit created a circuit split by
holding that petitioner “lacked a reasonable
expectation of privacy in his HIV status and his
compliance with his treatment plan”—and thus lacked
a right to privacy in his HIV diagnosis and
treatment—while in prison. Payne v. Taslimi, 998
F.3d 648, 658 (4th Cir. 2021). This Court should
resolve the circuit split and confirm prisoners’
Fourteenth Amendment right to privacy as to HIV
status.
The Fourth Circuit has acknowledged the
Fourteenth Amendment right “in avoiding disclosure
of personal matters.” Walls v. City of Petersburg, 895
F.2d 188, 192 (4th Cir. 1990). Outside of the context
of prisons, this right presumably extends to privacy in
one’s medical information—such as HIV status. See
id. (“The more intimate or personal the information,
the more justified is the expectation that it will not be
subject to public scrutiny.”) But in this case, the court
decided that any such right is extinguished once a
prisoner enters the prison gates. See Payne, 998 F.3d
at 655–57.
Unlike other circuits, the Fourth Circuit
invoked a “reasonable expectation of privacy” test and
thus considers the right to medical privacy under an
analysis used to consider claims for Fourth (as opposed
to Fourteenth) Amendment violations. Id. at 655–58.
Applying this test, the court broadly concluded that
prisoners lack a reasonable expectation of privacy as
9
to HIV status “for all purposes.” Id. at 659.
In denying petitioner a right to privacy in his
HIV status, the court compared disclosing petitioner’s
medical information to the physical search of a
prisoner’s cell in Hudson, and subjected petitioner’s
claims to the same “reasonable expectation of privacy”
analysis used in Fourth Amendment challenges to
searches and seizures. Id. at 657–58. The court thus
considered “(1) whether a reasonable expectation of
privacy in the information exists as to entitle it to
privacy protection and, if so, (2) whether a compelling
governmental interest in disclosure outweighs the
individual’s privacy interest.” Id. at 657 (quoting
Walls, 895 F.2d at 192) (cleaned up).
By invoking this Fourth Amendment analysis,
the Fourth Circuit significantly diverged from other
circuits. As discussed, the Second and Third Circuits
expressly declined to view the right to privacy as to an
prisoner’s HIV status through a Fourth Amendment
lens, finding that the “asserted right to privacy in [a
prisoner’s] medical information is completely different
than the right extinguished in Hudson.” Delie, 257
F.3d at 316 (citations omitted); see also Powell, 175
F.3d at 112 n.3 (“The right to maintain the
confidentiality of medical information is sufficiently
distinct from the right to privacy protected by the
Fourth Amendment such that the Supreme Court's
holding in Hudson v. Palmer has no bearing on this
case.”).
Likewise, the Fifth and Seventh Circuits have
viewed Hudson as limited to the specific context of
searching prison cells for contraband—refusing to
extend Hudson to other privacy interests. Henry v.
Hulett, 969 F.3d 769, 777 (7th Cir. 2020) (en banc)
(“the Supreme Court has never extended the scope of
10
Hudson to exclude any aspect of a prisoner’s life
beyond her cell from the reaches of the Fourth
Amendment”); Elliott v. Lynn, 38 F.3d 188, 191 n.3
(5th Cir. 1994) (“Hudson held only that prisoners have
no justified expectation of privacy in their prison
cells”).
The Fourth Circuit stands alone in extending
Hudson’s Fourth Amendment analysis to the context
of medical-information privacy, and its position
conflicts with holdings by the Second, Third, Fifth, and
Seventh circuits. This circuit split has not been lost on
the court, which acknowledged “the merits” of the
“position” taken by other circuits, but held “we are
constrained to apply our holding in Walls to the
contrary.” Payne, 998 F.3d at 660 n.10 (citing Walls,
895 F.2d at 188).
This Court, of course, is not so constrained.
Indeed, the Court’s own precedent upholding privacy
rights is consistent with confirming a prisoner’s right
to privacy as to HIV status. See Whalen, 429 U.S. at
600–02 (upholding a government program to gather
prescription medicine information against a privacy
challenge because it provided meaningful safeguards
against public disclosure of the private medical
information); Nixon v. Adm’r of Gen. Servs., 433 U.S. 425,
457-59 (1977) (upholding the government sorting of
millions of pages of presidential documents against a
privacy challenge in part because the government would
protect against “undue dissemination of private
materials”); See Nasa v. Nelson, 562 U.S. 134, 155–56
(2011) (upholding a questionnaire for NASA workers
that was “subject to substantial protections against
disclosure to the public”).
Given the caution with which this Court
approaches pronouncements regarding constitutional
11
right of informational privacy, it bears noting that the
Sixth Circuit’s decision in Moore comports with that
circuit’s demanding standard for privacy protection,
limited to private information that “relates to one of
those personal rights that can be deemed fundamental
or implicit in the concept of ordered liberty.” 379 F.
App’x at 429 (quotation marks omitted). It has been
held specifically that this standard is met “where the
release of personal information could lead to bodily
harm[.]” Lambert v. Hartman, 517 F.3d 433, 440 (6th
Cir. 2008) (citing Kallstrom v. City of Columbus, 136
F.3d 1055 (6th Cir. 1998)). An almost ubiquitous
concern in the case law regarding a prisoner’s HIV
status, along with transmission risk, is the risk of
violence or other harm to incarcerated people living
with HIV at the hands of other incarcerated people
learning that fact.
Since the Court has thus far declined to weigh
in on the constitutional right of privacy, the circuit
courts have taken up the mantle. See Nelson, 562 U.S.
at 138 (“We assume, without deciding, that the
Constitution protects a privacy right of the sort
mentioned in Whalen and Nixon[.]”). Through that
process, there has emerged a rationale for holding in
favor of petitioner’s privacy right in a minimalist
manner. This Court should, at a minimum, agree with
the Sixth Circuit and hold that a privacy right exists
when it “relates to one of those personal rights that can
be deemed fundamental or implicit in the concept of
ordered liberty.” See Moore, 379 F. App’x at 429
(quotation marks omitted). The “at a minimum”
qualification would make clear that the Court is not
foreclosing the possibility of privacy claims under less
onerous standards and thus does not pretermit
percolation of more complex questions. Even such a
12
minimalist ruling could do much to rein in extreme
decisions like the Fourth Circuit’s here.
II.
Review Is Particularly Warranted To
Prevent Unconstitutional Disclosure Of A
Prisoner’s
HIV
Status,
Causing
Unnecessary Harassment And Harm.
The stigma attached to one’s HIV-positive
status—and the prejudice that those infected face—is
deep-rooted and well-known in the United States.
Since the onset of the HIV epidemic in the 1980s,
individuals with HIV have been subjected to pervasive
discrimination.
Hannah R. Fishman, HIV
Confidentiality and Stigma: A Way Forward, 16 U. PA .
J. C ONST. L. 199, 201 (2013).
In addition to the physical elements of their
medical condition, those living with HIV often “have
been forced to keep their illness secret to avoid losing
jobs and being socially alienated.” Ibid. The stigma
surrounding HIV “has been labeled as the most
important social and psychological issue of the HIV
experience” and can have dire consequences on an
HIV-positive person’s mental and physical health.
Lance S. Rintamaki et al., Social Stigma Concerns and
HIV Medication Adherence, 20 AIDS PATIENT CARE &
STD S 359, 360 (2006); see also Susan Reif et al.,
Perceptions and Impact of HIV Stigma Among High
Risk Populations in the US Deep South, 4 J. HIV &
AIDS 1, 1–3 (2018). Indeed, “[k]nowing that bias and
stigmatization are often consequences of infection,
people with high concerns for stigma may be less likely
to disclose their HIV status to others either out of
shame or fear of persecution.” Rintamaki et al., supra,
at 360.
This desire to conceal one’s HIV status often
13
extends to concealment from medical professionals
and results in “less use of health and social services,
anxiety, negative body-image, and poorer medication
adherence among individuals living with HIV and
with avoiding or delaying HIV testing among those at
high risk for HIV.” Ibid.; Reif et al. supra, at 1–3. As
a 2006 study among HIV patients revealed, a strong
link exists between a patient’s concern for the social
stigma surrounding HIV and the patient’s adherence
to his HIV medication regimen. See Rintamaki et al.,
supra, at 364–66.
Situations such as a doctor’s visit, which risks
revealing a person’s HIV status, “create dilemmas for
people living with HIV in which they must weigh the
costs of taking their medications against others
learning about their diagnosis.” Id. at 361. Often, a
patient with HIV will forgo treatment in favor of
nondisclosure. Ibid. Due to these concerns, “many
experts believe that ensuring patients’ confidentiality
in their HIV-related information will encourage
testing and reduce the spread of HIV.” Fishman,
supra, at 201.
Indeed, various circuits and district courts
across the country have recognized a privacy interest
in one’s HIV-positive status given the stigma and risks
associated with public disclosure. See, e.g., Delie, 257
F.3d at 315 (“[T]he privacy interest in information
regarding one’s HIV status is particularly strong
because of the stigma, potential for harassment, and
‘risk of much harm from non-consensual dissemination
of the information.’”) (quoting Doe v. Se. Pa. Transp.
Auth., 72 F.3d 1133, 1140 (3d Cir. 1995); Powell, 175
F.3d at 111 (“HIV . . . is the unusual condition that is
likely to provoke both an intense desire to preserve
one’s medical confidentiality, as well as hostility and
14
intolerance from others.”); Doe v. City of N.Y., 15 F.3d
264, 267 (2d Cir. 1994) (“An individual revealing that
she is HIV seropositive potentially exposes herself not
to understanding or compassion but to discrimination
and intolerance, further necessitating the extension of
the right to confidentiality over such information.”);
Doe v. City and Cnty. of S.F., 2017 WL 1508982, at *2
(N.D. Cal. Apr. 27, 2017) (permitting the plaintiff to
proceed anonymously “to protect Plaintiff from injury
or personal embarrassment, based on Plaintiff's HIVpositive status”); Doe v. Lincoln Natl’l Life Ins. Co.,
2017 U.S. Dist. LEXIS 117110, at *2 (N.D. Cal. July
26, 2017) (“Although public discourse, understanding,
and acceptance of such issues has improved in recent
years, the Court recognizes that society continues to
place at least some stigma on those diagnosed with
HIV, and fear of negative treatment due to HIV
remains reasonable and understandable.”); Doe v.
Metro. Life Ins. Co., 2016 U.S LEXIS 64387, at *2
(N.D. Cal. May 13, 2016) (finding the plaintiff’s HIVpositive status to be “of a sufficiently sensitive and
personal nature such that the use of a pseudonym is
appropriate ‘to protect a person from harassment,
injury, ridicule or personal embarrassment.’” (citation
omitted)); Roe v. City of N.Y., 151 F. Supp. 2d 495, 510
(S.D.N.Y. 2001) (finding that “HIV-positive plaintiffs
are in a highly sensitive position and therefore should
be allowed to proceed anonymously.”); Roe v. City of
Milwaukee, 37 F. Supp. 2d 1127, 1129 (E.D. Wisc.
1999) (“I believe that in modern society one’s HIVpositive status, unlike most other medical conditions,
is still considered a stigma. The plaintiff’s HIVpositive status cannot be viewed as a ‘common
disorder;’ such that disclosure can be viewed as
inconsequential.”); Patient v. Corbin, 37 F. Supp. 2d
433, 433 (E.D. Va. 1998) (“Being HIV positive carries
15
a significant stigma in many parts of today’s society.”);
W.G.A. v. Priority Pharm., Inc., 184 F.R.D. 616, 617
(E.D. Mo. 1999) (“It is understandable that plaintiff
does not wish to be publicly identified as a[n]
individual with AIDS, which is a personal matter of
the utmost intimacy. Persons with AIDS may be
subjected to discrimination in the workplace, schools,
social settings and public accommodations.”).
This stigma persists in prison settings, where
the risks of violence and isolation against those living
with HIV are especially high. “Inside of prisons,
people living with HIV/AIDS are often the most
vulnerable and stigmatized segment of the prison
population. Fear of HIV/AIDS often places HIVpositive prisoners at increased risk of social isolation,
violence, and human rights abuses from both prisoners
and prison staff.” U NITED NATIONS O FFICE ON D RUGS
AND
CRIME,
HIV/AIDS
PREVENTION,
CARE ,
TREATMENT, AND S UPPORT IN PRISON SETTINGS 12 (Oct.
2006) [hereinafter UNODC].
Various circuits have recognized these prisonspecific risks as well. See, e.g., Powell, 175 F.3d at 115
(“[D]isclosure [of an inmates HIV-positive status] . . .
could constitute deliberate indifference to a
substantial risk that such inmate would suffer serious
harm at the hands of other inmates.”); Anderson v.
Romero, 72 F.3d 518, 523 (7th Cir. 1995) (assuming
disclosure of a prisoner’s HIV-positive status would
make him “a likely target of violence by other
inmates”); Harris v. Thigpen, 941 F.2d 1495, 1520 n.36
(11th Cir. 1991) (“The close quarters and heightened
occurrences of high-risk activity in prisons
undoubtedly accentuate ‘AIDS phobia’ for those who
must continually deal with the presence of HIV in the
correctional context; ‘when patients with AIDS or HIV
16
are discovered in the prison system, there is a
crescendo of concern leading to panic on the part of
prisoners, correctional staff, as well as the medical
staff.’”)
(citation
omitted
and
alterations
incorporated).
The prejudice that individuals with HIV face is
due, in large part, to a lack of understanding and
myriad misinformation concerning the disease.
UNODC, supra, at 12; GLAAD, 2021 S TATE OF HIV
STIGMA 4 (2021). Indeed, as the Eleventh Circuit has
explained, “widespread” “[i]gnorance and prejudice
concerning the disease” greatly exacerbates the risks
of disclosing a positive HIV diagnosis. Thigpen, 941
F.2d at 1514. Chief among misunderstandings are
those concerning the transmissibility of HIV.
UNODC, supra, at 12; GLAAD, supra, at 4. Through
modern advancements, HIV medicine can now
suppress the virus to an undetectable level, preventing
infected individuals from transmitting the virus to
CENTERS FOR DISEASE C ONTROL AND
others.
PREVENTION, EVIDENCE OF HIV TREATMENT AND VIRAL
SUPPRESSION
IN
PREVENTING
THE
SEXUAL
TRANSMISSION OF HIV 1 (Dec. 2020). Nonetheless,
most of the United States population does not believe
that medication can prevent transmission. GLAAD,
supra, at 5. Even further, a common—yet mistaken—
belief is that HIV may be transmitted through casual
contact. UNODC, supra, at 12.
The Fourth Circuit’s opinion dangerously
reflects that mistaken belief. In finding that “Payne
lacked a reasonable expectation of privacy in his HIV
status,” the Fourth Circuit noted that “[t]he limits on
an inmate’s expectations of privacy are particularly
strong where the information he seeks to protect
relates to the institutional safety of the prison.”
17
Payne, 998 F.3d at 658–59. Indeed, while recognizing
“HIV and its spread can be controlled by medicine,” the
court—in the same breath—compared HIV to the
COVID-19 virus, suggesting that HIV “can spread
rapidly” within a prison. Id. at 659. Thus, the court
found it “hard to see how Payne would have a
reasonable
expectation
of
privacy
in
his
communicable-disease status within a medical unit.”
Ibid.
Resting on beliefs unsupported by modern
scientific understanding of the transmissibility of HIV,
the Fourth Circuit’s decision serves only to perpetuate
the harmful misconceptions surrounding HIV and the
pervasive stigma that accompanies a positive
diagnosis. This decision not only strips prisoners of
their privacy rights based on misinformation, but
opens the door for the widely known and significant
risks that will accompany the disclosures that the
decision permits.
III.
There Is No Adverse Effect To Penological
Interests In Requiring Modest Measures
To Maintain Privacy As To HIV Status.
By refusing to recognize any privacy right in
HIV status, the decision below preempted any
consideration of legitimate penological interests.
Under the Fourth Circuit’s view, no protection exists
for an incarcerated person’s HIV status, no matter
why a prison guard or doctor may choose to disclose it,
or to whom. This is contrary to what the constitution
demands.
The facts of this case are straightforward. Dr.
Taslimi said loudly to petitioner: “You did not take
your HIV meds today.” App. 28. Dr. Taslimi did not
have to specify what type of medication petitioner
18
needed to take to convey the necessary information to
petitioner. Requiring prison officials, whether guards
or doctors, to refrain from disclosing a prisoner’s HIV
status to other incarcerated people or civilians would
not adversely affect penological interests because nondisclosure would keep the person living with HIV safer
and the Fourth Circuit’s understanding of
communicability is not supported by science.
Though Respondents “ha[ve] the burden to
prove that a compelling governmental interest in
disclosure outweighs the individual’s privacy interest,”
the absence of any legitimate penological interest in
this case is notable. Walls, 895 F.2d at 192. Further,
the unnecessary disclosure of a prisoner’s HIV status
would not only fail to serve penological interests but
would be contrary to them. As this Court has
recognized, “central to all other corrections goals is the
institutional consideration of internal security within
the corrections facilities themselves.” Pell, 417 U.S. at
823. And as discussed supra, disclosure of one’s HIV
status can lead to violence, isolation, mental and
physical health issues, and nonadherence to medical
regimens. These risks are directly at odds with the
interests in a facility’s security.
Current Bureau of Prisons (“BOP”) regulations
and policy show that prisons already recognize the
serious security concerns regarding disclosing a
prisoner’s HIV status. BOP regulations require that
“[a]ny disclosure of test results or medical information
is made in accordance with . . . The Privacy Act of 1974
. . . [and] The Correction Officers Health and Safety
Act of 1998[.]” Confidentiality of Information, 28
C.F.R. § 549.14(a)–(b) (2021). And as the BOP has
decided in implementing this regulation, “[a]ll parties,
with whom confidential medical information regarding
19
another individual is communicated, will be advised
not to share this information, by any means, with any
other person. Medical information may be
communicated among medical staff directly concerned
with an inmate’s case in the course of their
professional duties.” B UREAU OF PRISONS, INFECTIOUS
DISEASE MANAGEMENT 15 (2014).
Further, Freedom of Information Act (“FOIA”)
responses from the BOP confirms there is no
penological interest in disclosing a prisoner’s HIV
status:
“The Federal Bureau of Prisons has an
obligation to maintain the safe, secure,
and orderly operation of an institution,
and an inmate’s possession of any
document discussing HIV status,
regardless of whether it is positive or
negative, could raise substantial security
concerns. Therefore, we request as long
as the subject inmate is in the custody of
the Federal Bureau of Prisons that the
subject not be provided with any
document
containing
information
3
regarding HIV status.”
In making this request, the BOP invokes certain
exemptions to the information that the FOIA
mandates agencies to make publicly available. Ibid.;
see 5 U.S.C. § 552(a). Specifically, the BOP invokes
exceptions that permit it to refused public disclosure
of:
“[P]ersonnel
and
medical
files
and
3 U.S. Department of Justice Federal Bureau of Prisons, Freedom
of Information Act Response (Nov. 3, 2021).
20
similar files the disclosure of which
would constitute a clearly unwarranted
invasion of personal privacy.” § 552(b)(6).
“[R]ecords or information compiled for
law enforcement purposes” that “could
reasonably be expected to constitute an
unwarranted invasion of personal
privacy[.]” § 552(b)(7)(C).
“[R]ecords or information compiled for
law enforcement purposes” that “would
disclose techniques and procedures for
law enforcement investigations or
prosecutions,
or
would
disclose
guidelines
for
law
enforcement
investigations or prosecutions if such
disclosure could reasonably be expected
to risk circumvention of the law[.]
§ 552(b)(7)(E).
“[R]ecords or information compiled for
law enforcement purposes” that “could
reasonably be expected to endanger the
life or physical safety of any individual[.]”
§ 552(b)(7)(F).
Neither of these current regulations allow the
needless disclosure of a prisoner’s HIV status to other
prisoners. Since current BOP regulations already
recognize the importance of keeping a prisoner’s HIV
status confidential, there can be no adverse effect to
penological interests by requiring prison officials and
doctors to do the same.
21
CONCLUSION
For these reasons, the Court should grant the
petitioner’s request for a writ of certiorari.
November 23, 2021
Respectfully submitted,
CHARLES B. KLEIN
Counsel of Record
WINSTON & STRAWN LLP
1901 L STREET, N. W.
WASHINGTON , DC 20006
TELEPHONE: 202-282-5000
FAX: 202-282-5100
cklein@winston.com
COUNSEL FOR AMICUS C URIAE
This is a copy of a public record, reproduced as it was published. It is not legal advice, and it may not be the version a court would rely on. Check the official source before you cite it.